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dc.contributor.authorMelbøe, L.
dc.contributor.authorHansen, K.L.
dc.contributor.authorJohnsen, B.-E.
dc.contributor.authorFedreheim, G.E.
dc.contributor.authorDinesen, T.
dc.contributor.authorMinde, G.-T.
dc.contributor.authorRustad, M.
dc.date.accessioned2018-04-24T13:09:00Z
dc.date.available2018-04-24T13:09:00Z
dc.date.issued2016
dc.identifier.citationMelbøe, L., Hansen, K.L., Johnsen, B-E., Fedreheim, G.E., Dinesen, T., Minde, G-T., & Rustad, M (2016). Ethical and methodological issues in research with Sami experiencing disability. International Journal of Circumpolar Health, 75(1): 31656nb_NO
dc.identifier.urihttp://hdl.handle.net/11250/2495754
dc.description.abstractObjectives: The main study was designed to examine and understand the everyday life, transitions between life stages and democratic participation of Norwegian Sami people experiencing disability. Hence, the purpose of this article is to increase the understanding of possible ethical and methodological issues in research within this field. The article describes and discusses ethical and methodological issues that arose when conducting our study and identifies some strategies for addressing issues like these. Methods: The ethical and methodological issues addressed in the article are based on a qualitative study among indigenous Norwegian Sami people experiencing disability. The data in this study were collected through 31 semi-structured in-depth interviews with altogether 24 Sami people experiencing disability and 13 next of kin of Sami people experiencing disability (8 mothers, 2 fathers, 2 sister and 1 guardian). Findings and discussion: The researchers identified 4 main areas of ethical and methodological issues. We present these issues chronologically as they emerged in the research process: 1) concept of knowledge when designing the study, 2) gaining access, 3) data collection and 4) analysis and accountability. Conclusion: The knowledge generated from this study has the potential to benefit future health research, specifically of Norwegian Sami people experiencing disability, as well as health research concerning indigenous people in general, providing scientific-based insight into important ethical and methodological issues in research with indigenous people experiencing disability.nb_NO
dc.publisherInternational Journal of Circumpolar Healthnb_NO
dc.rightsNavngivelse 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/deed.no*
dc.subjectethical and methodological issuesnb_NO
dc.subjectSaminb_NO
dc.subjectindigenousnb_NO
dc.subjecthealthnb_NO
dc.subjectdisabilitynb_NO
dc.subjectNorwaynb_NO
dc.titleEthical and methodological issues in research with Sami experiencing disabilitynb_NO
dc.typeJournal articlenb_NO
dc.source.volume75nb_NO
dc.source.journalInternational Journal of Circumpolar Healthnb_NO
dc.source.issue1nb_NO
dc.identifier.doihttps://doi.org/10.3402/ijch.v75.31656


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